Resources for LVAD Patients & Caregivers
For additional LVAD information and support, explore this list of useful resources, including website links and direct contact information.
Download a digital copy of the decision aid by clicking the buttons below.
Download a digital copy of the decision aid by clicking the buttons below.
TECHNICAL AND SOCIAL SUPPORT
Your LVAD Team
Contact your LVAD coordinator for any reason at all.
MyLVAD
Learn more about LVAD technology and living with an LVAD. Connect with other LVAD patients and caregivers through blogs and forums.
LVAD Hospital Locator
Find an LVAD hospital or support center near you, or in areas where you plan to travel.
Monthly Community
Monthly Community VAD Support Groups for VAD Patients, Candidates, and Caregivers
Informed Medical Decisions Foundation
Caregiver Action Network
Family Voices Inc.
National Alliance for Caregiving
HOME CARE SUPPORT
Home Health Agencies
Find home healthcare agencies in your area.
Nursing Services in the Home
Find an Interim HealthCare location (available in 43 states).
MEDICATION AND MEDICAL SUPPLY RESOURCES
NeedyMeds.org
Provides information on assistance programs and drug discounts; offers its own drug discount card.
Healthwell
Helps people with ongoing, serious illnesses cover co-payments, deductibles, and health insurance premiums.
The Medicine Program
Helps people get prescription medicines for free, or nearly free of charge, through Patient Assistance Programs.
Patient Access Network
Helps people with ongoing, serious health problems pay for care costs that are not covered by insurance.
FINANCIAL CONCERNS
Your Hospital’s Financial Counselor
Ask your doctor or nurse about your hospital's financial counselor to receive advice on financing your care.
Your State Department of Insurance
Explore what services or information your state Department of Insurance can provide to help resolve any issues with your insurance.
HelpHopeLive
Get help raising money to help pay for your healthcare treatment.
INFORMATION ABOUT HEART TRANSPLANT THERAPY
National Foundation for Transplants
Get definitions of and more information about “Bridge to Transplant” (BTT) versus “Destination Therapy” (DT).
Bridge to Transplant (BTT)
Destination Therapy (DT)
PALLIATIVE AND SUPPORTIVE CARE
GetPalliativeCare.org
Learn about palliative care and whether it is right for you and your family.
Palliative Care Resources for Caregivers
ADVANCE DIRECTIVES
Aging with Dignity
Get more information on advance care and end of life planning:
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